chicating: I have a new dragon (Default)
when I chose my wheelchairs as an Object to write about.(There was a time when I'd never do that, btw.)Read more... )
chicating: I have a new dragon (Default)
for a disability and storytelling fellowship. But I'm not gonna do it, because they need everything, like, now, at this point, and because I think the margins I sit on are a bit neater than what they intended--sometimes it really does confuse and hurt me that there does not appear to be a space that is truly mine on this planet that is not a blogging box, but, like, be happy, secure and assertive, right? #Ladyboss. Even special stuff either tells me I'm too special or not special enough.
This, quite frankly, is a head-fuck that I'm tired of being upset by, but I think I'm over it and there it is again! I wish we had disability community that didn't feel like it was on a point system or that I had to collect enough crip skee-ball tickets.
But even though this is not 'my shot", it felt good to imagine doing things in the future again that are not waiting out Medicaid or making phone calls to human cardboard cutout Mark Kelly. I've decided that the next thing that comes along that is even kind of close to the battered old mental building that somebody might call my wheelhouse and doesn't involve my having a lot of extra cash, I'll apply and sort out what happens from there.(And then, probably have some face-plant to write about, because to tell you the truth, I don't feel like somebody who gets what she goes after anymore, now that my Advanced Placement test scores have gotten all moldy. But the glimpse of agency and motion felt good.
my life kind of works when it fits around somebody else's life. Which is about as thrilling as it sounds, as much as I'd love to cut to the part everyone wants and say It Turned Out Okay. But I can't yet.
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(although part of me does wish that I'd really been the seasoned activist my boss had expected me to be at the beginning of all this...I admit that.) I told some tales about stuff I'd been a part of--I didn't lie--but my part was small, and he thought it wasn't.(Even scaling back with PDA, they trust me more than the CIL *ever* did, which is its own tragic statement, when you think about it, considering that Empowering Disabled People didn't even mean sending stuff out with my name on it.)
And the person he describes as the "head" really did head it up, handling the eleven million annoying committee details in ways that would...probably depict minor nightmares for me if I attempted them(and it hurts that more of my disabled friends did not think of me as a true disabled friend) But this isn't a "show up and get your picture taken' kind of deal at all. She does the work I'm glad I'm not doing.
But it still hurts that it was gonna be "mine" and now? It really isn't.(Well, I get the same credit your parents give out when they're, like, "You were just the antic gleam in my eye when that happened."
"Muse" would be hard to put on my resume, if it ever mattered what I put on my resume.
I hate when I'm petty like that.
chicating: I have a new dragon (Default)
possibly not for abled consumption)
Read more... )
chicating: I have a new dragon (Default)
This is from what would be my novel, "Wedded Twist"...I'm not sure I believe it will be finished and published anymore because I've been thinking "ooh, my first novel" about some little nonsense FOREVER, but maybe.
Read more... )
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(If you feel like I left something out, let me know in the comments)

We, the undersigned, in our position as members of the Disability Issues Organizing Team, since disability crosses all artificial borders, affirm our commitment to access and freedom for all people. We affirm our commitment to peace, especially since war is a mass disabling event that touches lives long after the combat is over.
We demand a government that meets the needs of all its citizens and residents, in accordance with FDR’s Four Freedoms: Freedom from want, freedom from fear, freedom of expression,freedom of worship. FDR, himself a survivor of disability, used his experiences at Warm Springs to inform his work.
chicating: I have a new dragon (Default)
Back working on "Wedded Twist" again. Shocked at how real this graf feels, though it's fiction.
http://bohemiancrip.blogspot.com/2024/12/this-reads-as-both-fiction-and.html
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After all this time, I finally wrote an "OMG, the stick's blue," story, as a lot of people did in my creative-writing classes in college. (A few were good, but I think that's what drama is, when you're twenty in the burbs. (I couldn't write one because I wasn't having sex--not that I am now, again, but a sort of speculative-fiction elegy to my would-be fertility seems appropriate now, in ways it might not have when my fondest dream was to Fit. Which, of course, I never really managed, more than being the quippy mascot who makes everyone feel better with how weird she is.But I guess I didn't want to fit enough just to copy, though I did want to rip off Ann Beattie and Philip Roth pretty hard in those days.
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I feel good about how it came out, though, even as I wish I could share what great happiness felt like.It's nice to feel more honest. I mean, for a long time when I was a kid, I didn't really share what disability felt like.
http://bohemiancrip.blogspot.com/2024/05/a-type-of-grief.html
I had another friend, whom I regret losing touch with, who'd been through some shit they write those horrifying TV movies about who was surprised to tell me that she thought everyone's disability comes with some trauma. Well, maybe mine is comparatively low-level, but I finally felt like I know what she was getting at, and it isn't really where most abled people tend to focus, ie, neighborhood kids taking off on their bikes and I watch game shows. Though they did, and I did, right? But I wasn't really put out about that part. Maybe more that Kevin and Winnie and them,(let's say...my neighborhood wasn't that cute!) never really did slow their roll to make time for me.
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It's weird when you discover your own feelings when you write. Especially since this is so...wacky.
Read more... )
chicating: life-affirming Homicide quote (lifeaffirming)
Question 2:
What is something from your childhood that you love to this day?
-Love/hate watching disability content in movies and TV-Still sometimes feel like a failure for not being an inspiring optimist like the ideal sitcom crips of my youth, but it's not like I could put up my own little snarky videos during my childhood(born 1973) Not sure I'd have done it; my reaction to being stared at it middle school to my regret, was to be a people-pleasing goody-goody.
I read fast and learned to type when I was four because my parents got tired of taking dictation of all my crazy ideas.(I'm disappointed about where I am as a writer partially because it sometimes feels like I've had a forty-year career already. America loves prodigies, not that I quite clear the bar, there.
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But there's a bit more. Maybe three more parts
Read more... )
chicating: I have a new dragon (Default)
he's the *best* one, so, who better to throw paint for?
Read more... )
chicating: I have a new dragon (Default)
Paralympian to Kelly:
"What makes you different is your greatest gift."
Me:
Can I take it back? And not for store credit.

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